Cathy Speck wants YOU !
Join us at “The 5th Annual West Coast SPECKtacular Skydiving for ALS” event.
What are you doing in Yolo County on Saturday May 17th from 9 am to 5 pm? Do you wanna jump out of a plane — one that’s so high you can actually see the end of a rainbow? “No,” you say? Harrumph ! Would you try it if you were tandem jumping with a professional “jump master” strapped on your backside?
Now is the time to Skydive for a cause, a heart- wrenching cause called amyotrophic lateral sclerosis (ALS) also known as Lou Gehrig’s disease. As always, this event is for ALS awareness, and this year our Fundraiser is for the ALS Therapy Development Institute (ALS TDI) You can learn more about this excellent research organization at : www.als.net
This West Coast SPECKtacular Skydiving for ALS is gonna be HUGE this year. We’re partnering with two other regional ALS groups,who last year raised $30,000. Space is limited so you need to call and reserve your spot with a $25 deposit before other non-ALS folks fill up all the spots on the plane. All details about Skydance Skydving (about ten minutes northwest of Davis) are on their Facebook page and on their website: http://tandemskydivingschool.com/ CA. 24390 Aviation Ave, Davis, California 95616 (530) 753-2651 9 am to 5 pm
How does skydiving raise money for ALS ? We’d like each jumper to to be sponsored by others: folks who don’t want to jump out of a plane, or live too far away but still want to support the ALS cause. I’ll be so grateful if you can get $500 from your community, or $10,000 from your employer, or $25 from your pockets we’ll be so grateful.
Basically it’s like any other “Run for Colon Cancer, Ride to Defeat Leukemia” where participants ask people to sponsor them, and the supporter can watch at the event in person or “in spirit.” Later on you can show your supporters the video of your jump if you choose to have the videographer tape your experience.
All of the donations go directly to ALS TDI . More details about the actual jump are available on the Facebook page of Skydance Skydiving . If you don’t sign up soon you might lose your chance. I will also talk to anyone on the phone or in person about how amazingly surreal ,beautiful, spiritual and thrilling skydiving is. I would do it again this year but I’m having problems with vertigo, and…y’know.
What is ALS ?
Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a fatal progressive, neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death–usually from respiritory failure. The most common form of ALS in the United States is “sporadic” ALS. It may affect anyone, anywhere. “Familial” ALS (FALS) means the disease is inherited. Only about 5 to 10% of all ALS patients appear to have genetic or inherited form of ALS. In those families, there is a 50% chance each offspring will inherit the gene mutation and may develop the disease.
In February 1971, my mom Dorothy, a mother of nine was diagnosed with ALS . She was only 50 years- old when the doctors finally identified the rare disease. One December 1972, less than one month after I had turned thirteen, mom died in the Davis, CA, our hometown. Our extended family, friends and many people in the community were devastated. Cathy’s Dad, Gene, lost the love of his life, the mother of their children, but at least she lived long enough to meet at least one grandchild, Becky.
I don’t want anyone else to lose their life to ALS. And even closer to my heart, I don’t want anyone else in my family to live and die with ALS. Some of us with her lineage can contain a rare genetic mutation. Like other families with the SOD1 genetic mutation, siblings , grand children nieces and nephews have a 50 per cent chance of inheriting the mutation that leads to ALS if their parent has/had it.. That mutation already got our mom, my grandma and her sister and my two oldest brothers.
In 2008 when I was helping as one of the a caregivers our brother in 2008 I noticed that I had similar symptoms to his and my mom’s: I had unusual fatigue, my legs felt like they were made out of solid oak at a time when I was in great shape and had plenty of endurance. I didn’t like going to bed, because cruel spasms taunted my feet and legs almost every night so I wrestled with myself and lost. I felt like I couldn’t breathe and that led to tormenting nightmares, and periods of horrific suffocation. When I got up in the morning my body was wracked as if I had run a marathon on our expensive mattress. During the day my head was too heavy for my neck muscles, and for the first time in my life,….blah blah blah. In 2009. after so many tests ruled out anything else, I had my DNA tested and sure enough I had the dreaded genetic mutation. Enough about me- for now.
If you are anywhere near this area, on Saturday May 17th, please come join the party–even if you don’t have any money to donate. Come learn about ALS–we are all in this together. Let’s do it potluck style– you can bring your ice chests with water, beer, wine, juice, coconut water and other picnic lunch/snacks to share with our wonderful community.
When we’re not in the sky we’ll be on the picnic grounds celebrating the love and support we have for each other. There are picnic tables, sun umbrellas,rest rooms, a skydiving gift shop, and a great viewing area where can watch up close as our friends land. It is thrilling to be part of this generous, brave,thrilling experience.
.It is so amazing to watch our peeps jump out of the plane and land safely. Then when you ask them how to describe it they can hardly find the words. (You can also watch my skydive video on You tube: www.youtube.com/watch?v=2HPIIv1KnDg
I jumped at our first event on April 2010. My experience was so amazing — it seemed spiritual in a way. I could easily get addicted to skydiving, because I have “an addict-like personality.” But I never want to lessen my experience in any way at all, so I’ll be sharing the joy and healthy, positive energy with my walker or scooter on the ground. Those of you who know Mazie the monkey face pug/poodle/terrier Princess will get some special time with our dog/child.
My personal goal this year is $28,000 but I’d love to get for $29,000. Yes ! Positive thinking. I realize folks can’t afford as much as they’d like to, so if you know of any organizations, people, businesses anywhere who have a chunk of money to offer, please let them know about our event.
I’m expecting the 5th Annual West Coast SPECKtacular Skydive for ALS to be a successful event financially, and an amazing opportunity to connect with others whose lives have been impacted by ALS. Even though it’s the “West Coast” skydiving event, we’re accepting donations from the East coast and…what the heck, we’re reaching out to all over the world.
This year we combined all three Skydance Skydiving groups to make sure our skydiving bash is a big smash !
By the way, disabled folks, like Gloria, can skydive too — your “jump master” just needs to know (ASAP) ahead of time so he can determine how to adapt the equipment for you : email@example.com
If you have other questions about donations, potluck, host/volunteers, you can email me directly at: firstname.lastname@example.org or text me: 310-508-7401 We must secure our spots on the plane now or they could be filled by people who don’t know what ALS is or don’t care about.
Call, email Skydance today (530) 753-2651 9 am to 5 pm to reserve your spot with a $25 deposit. What do you think about this ? Speaking of “Think” take a peek at my rockin’ life about two years before ALS (BALS.)
Think about it.
Thank you so very much for taking time to read and watch all of my….blah blah blah.
They don’t call me “Chatty Cathy” for nuthin’.
Here is a link from a previous SPECKtacular Skydiving events at Skydance:
Here is a link to the article in the Sacramento Bee. The website includes a video.
The SPECKtacular FUNd focuses on familal ALS (FALS)
5th Annual West Coast Specktacular Skydiving for YFALS
Skydance Skydiving in Davis, California
For West Coast Skydive for YFALS · Gloria Samaniego Hale Gloria Hale skydives. She has done it three times already, and is planning to do it again in May of this year. Gloria also has ALS—yet that does not get in the way of her taking part in the exhilarating experience!
Gloria first learned about skydiving through her relationship with the ALS_Therapy_Development_Institute(ALSTDI) and their Young_Faces_of_ALS (YFALS) campaign. The YFALS campaign was created by a small group of people living with ALS who all share a disturbing characteristic; they all received their diagnosis before their 30th birthday.
Most of the emphasis on ALS is placed on those that develop the disease during midlife. YFALS was created as a community for patients of ALS, as well as their families and young friends. YFALS has since become a catalyst for accelerating research at the ALSTDI through fundraising events; such as skydiving. Gloria’s first dive was in 2012. She says that she was not at all nervous prior to her dive, and in fact did it with a huge smile!!! In 2013, Gloria raised over $30,000 for the ALSTDI through skydiving!
The third group jumping with is comprised of other families who have the SOD 1 mutation.The Mishork Misfits. This group was created to benefit the West Coast Skydive for YFALS taking place for the third consecutive year at Skydance Skydiving in Davis
They represent a family with an extensive history of familial ALS. This cruel disease has yet to skip a generation of the Mishork family. Many members of the Mishork family, both living and deceased, are currently or were previously carriers of the mutant SOD1 enzyme, a known correlated trait of familial ALS diagnoses.